Care Today Cure Tomorrow…
Special
Needs Trusts: Protect Your Child's Financial Future
Published by NOLO; 3 edition
(the experts on pro-bono [legal do it yourself])
272 Pages with
a CD of Legal forms & more
$34.99 Order
for only $23.09 (34% off)
free shipping
available
ARC of Hunterdon
Saturday Program & Summer Day Camp
A Saturday Drop Off respite program for ages 7-18 with
occasional sleepovers
at Point Breeze in
There is no cost for either program but you need to be
The ARC of Hunterdon can assist you in becoming
Please click on the title link above for full details.
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T Winter
Family Rettreat NJ & Surrounding Region
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Downloadable Rett Syndrome Documents – created
by and provided at no charge by Unicorn Meadows.
What is Rett Syndrome (what’s wrong with
her?) [Download
pdf file]
What Kids (& Parents) ask about Rett Syndrome (why
is she so different?) [Download
pdf file] updated June 2011
Silent Angels (Life with A Special Needs Child) ©2006
Primary Rett Links
Rett Syndrome Magazine – Rett Syndrome Magazine is
for & about those with Rett Syndrome & those who love them, care for
them, befriend them, or otherwise serve them. The mission of this online
magazine is to focus on solutions, services, & supports that enhance the
day-to-day lives of those in the Rett Syndrome community. This includes those
with Rett Syndrome, parents, caregivers, siblings, friends, physicians,
researchers, nurses, educators, social workers, therapists, and others. Our
goal is to freely share information, stories, & inspiration with
others.
Rett Syndrome Research Trust – Welcome to the Rett Syndrome Research Trust. A newly formed
501(c)(3) nonprofit organization intensively focused on the development of
treatments and cures for Rett Syndrome and related MECP2 disorders. The
strength of the Trust is based on the guidance of founders and advisors who are
largely responsible for the major advances in Rett research over the past
decade.
International
Rett Syndrome Foundation – Information,
resources & RETTNET. International
Rett Syndrome Foundation
is a 501(c)(3) non-profit organization.
The International Rett Syndrome
Association & the Rett
Syndrome Research Foundation merged in July 2007 to form
the International Rett Syndrome
Foundation.
National
Center for Biotechnology Information
National Institute of Health Rett Syndrome Booklet-2006 [Download pdf file 12
pages 8˝ x 11]
National
Institute of Health Rett Syndrome Fact Sheet Printer
Friendly Web Page
Request free mailed brochure
from NIH (one to ten copies)
USDA Agricultural Research Service
Helping Girls with
Rett Syndrome Improve Growth
Coping
With Rett Syndrome [Download pdf file]
Rett Articles [downloadable pdf files]
National
Influence
of Mutation Type and X Chromosome Inactivation on Rett Syndrome Phenotypes
American Neurological Association [Download pdf file]
When The Brain
Fails – Huda Zoghbi unravels the genetics of Rett Syndrome and other disorders [Download pdf file]
How
Research Advances Will Affect People with Developmental Disabilities in the 21st
Century American Association on Mental Retardation
Other Articles [downloadable pdf files &
on-line articles]
Family
Support Center of New Jersey
NJ Division
of Developmental Disabilities News Center
Tax
benefits for parents with handicapped children from Ask.com
The Law & Disabilities
free various articles
Regional US Rett Links
New Jersey Rett Syndrome Association [Members
from
Northwest Rett Syndrome Foundation [Members
from
Rett Syndrome Association of Illinois [Members
from
Southeastern Rett Syndrome Alliance
Rett Links Around the World [these links may not be in English
unless so noted]
Australia [In
English]
Austria [In German]
Belgium [In Dutch]
Brazil [In
Portuguese]
Ontario Rett Syndrome Association [In English]
Catalan [?]
Denmark [In Danish]
France [In French]
Rett
Syndrome Europe
[In English]
Germany [In German]
Holland [In
Dutch]
Israel [In Hebrew]
Italy [In Italian]
Japan [In Japanese]
Norway [In Norwegian]
Poland [In Polish]
Spain [In Spanish]
Spain [In Spanish] different web site
Sweden [In Swedish]
Turkey
[In Turkish]
Sweden [for English
access link click here] [Dual
Language Web Site in Swedish & English]
United Kingdom [In English]
Select Rett Links
Living Well
With Rett Syndrome
Rett
Syndrome Magazine Rett Syndrome on-line Magazine.
Rett e-mail Lists
IRSF RettNet
– IRSF RettNet is a moderated e-mail forum for all interested
persons, parents, teachers, relatives, therapists, doctors and friends who have
an interest in Rett Syndrome.
Subscribers to IRSF RettNet are primarily parents and guardians, but
also include a number of relatives,
therapists, teachers, physicians, researchers, and others interested in
the cause.
List for Adults
who have a Rett Syndrome Angel in their life [You
must create a free Yahoo profile]
Rett
Syndrome Parents [You must create a free Yahoo profile]
Books about Rett Syndrome
Silent
Angels – The Rett Syndrome Story
VHS tape by IRSA [out
of print] now available through amazon.com
List
Price:$19.95 your price $14.85. {Please confirm current price and availability with the
order link.}To
order
The
Official Parent's Sourcebook on Rett Syndrome: A Revised and Updated Directory
for the Internet Age by Icon Health Publications
Paperback
(November 2002) Icon Group International - 184 pages – ISBN: 0597831203.
List
Price:$28.95 {Please confirm current price and availability with the order link.} To order
Pathways
to Learning in Rett Syndrome by Jackie Lewis & Debbie
Wilson
Paperback (May 1998) David Fulton Pub – 144 pages – ISBN: 185346533X.
List
Price:$26.95 {Please confirm current price and availability with the order link.} To order
Rett
Disorder and the Developing Brain by Alison Kerr (Editor),
Ingegerd Witt Engerstrom (Editor)
Hardcover (April 2001) Oxford Press – 379 pages – ISBN: 0192630830.
List
Price:$125.00 {Please
confirm current price and availability with the order link.} To order
The
Official Parent's Sourcebook on Rett Syndrome: A Revised and Updated Directory
for the Internet Age by Icon Health Publications
Paperback
(November 2002) Icon Group International - 184 pages – ISBN: 0597831203.
List
Price:$28.95 {Please confirm current price and availability with the order link.} To order
Select Commercial Sources
(these links
have been provided by Rett Families, Relative & Friends – No endorsement is
made by this web site)
AssistedLivingStore.com
– Wholesale Linen & Textile products.
Gloves In A
Bottle – Protects the skin and retains its natural moisture.
Hinkle,
Fingles & Prior – NJ/PA Attorneys with many years of
experience providing expert counsel and legal services to families of people
with disabilities.
Most of their attorneys have
a sibling or family member with disabilities, so that have been there.
How-to-Register-a-Service-Dog-or-How-to-Scam-the-Disabled – Actually the article explains how to avoid
being scammed out of hundreds of dollars.
Spot, a service
dog, is the “owner” of http://www.ServiceDogTags.com
and
is a prolific writer, with his owner’s assistance, on matters concerning
service dogs and the disabled. Spot lets his owner help him put the web site
together and write articles as it's hard as heck to type with paws. Besides
it's good to throw his owner a bone every once in a while so he feels useful.
Formerly DoggyDMV, they now make low cost personalized service dog tags.
Southpaw
Enterprises® – Founded in 1976, they are dedicated to developing and
manufacturing sensory integration dysfunction & neurodevelopmental products
that help therapeutic professionals, people with special needs, their families,
& other professionals, solve problems or meet new challenges.
Wheelchair
Seat Covers™ – Decorative wheelchair
seat covers made by a mom who has a teenage
daughter with Rett Syndrome. Check it out.
You can even pay with PayPal.
Weighted Bean Blanket – Learn about the calming and comforting benefits of a hug from this special blanket.
Non Rett
Syndrome links that are Important to Laura’s Dad
Clink on the logo above to find legal
services related to Patents, Copyright, Trademarks, Internet & Computer Law
matched with a unique sense to your business needs. KRIVOSHIK LLC offers
over a decade of extensive experience in Intellectual Property Law including
all aspects of Patents, Copyrights, Digital Intellectual Property, Trade
Secrets, Internet Law and Trademark Law, Intellectual Property Law is our only
focus with technical expertise in the all aspects of
electronic, electrical, communication, computer systems, software, Internet,
biomedical instrumentation, optical and the mechanical arts as well as all
aspects of Digital Intellectual Property Law, Copyright Law and Trademark Law.
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Click on our logo above to explore Ignatz® to discover a unique synergism of old world
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Visit our eBay
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enabling trade on a local, national and international basis.
For the love
of our Rett Angel
Laura Amy
at Baba’s house with Skip her Service (seizure &
companion) Dog
on Russian Christmas (January 7th) August 27th
2008
September 12th 1993 –
On Tuesday night
April 13th 2010 at bed time Laura kept saying again & again
‘take my picture, take my picture’.
She would not
stop so I finally did with my cell phone with only the 4 watt night light on in
her bedroom (no flash).
The first time
the picture was all black, I moved the night light & took this second
photograph, which I showed to Laura
and said ‘we can see you now’, I almost never
showed Laura the pictures on my camera let along my cell phone.
Laura then told
me ‘thank you, I love you daddy’. I gave
her a kiss and said, ‘I love you too hon (honey),
please go to
sleep so you won’t be tired for school in the morning.’
Laura loved
going to the Midland School so much
that she was lost on snow days & holidays.
I cannot believe
that this is the last photograph of our beautiful angel we will ever have.
I love you Laura
& always will.
Daddy
For the love of our special angel who we miss so very much &
always will..
Angels are Real... [Download
pdf file]
First shared in a small part by
Laura’s dad August 9th, 2007 and expanded April 23rd
2010.
Don’t weep at my grave... [Download pdf file]
Read by Laura’s little sister,
Danielle 12, on April 23rd 2010.
Lost our special Angel... [Download pdf
file]
Silent Angels (Life with a special needs child)... [Download pdf file]
Written & published by
Laura’s mom.
Laura’s Story in Pictures (a not so Silent
Angel)
Laura’s Garden (a butterfly memorial garden)
Please feel free to suggest a link or a pdf document etc. to
add. Please contact us at unicorn@ignatz.net.
Please understand that
this website is a negative profit
venture, thank you.
Downloadable PDF documents require the
free Adobe Reader.
This web
site is sponsored by 
® and 
™.
Please explore Ignatz® to discover a unique synergism of old world professionalism with state of the art
technology where you will unearth many interesting and helpful facts,
reference sources & links.
Please visit KRIVOSHIK LLC
for legal services related to Patents, Copyright, Trademarks,
Internet & Computer Law focused on your business needs.
This web site
was designed, created & is maintained by David P. Krivoshik.
A limited, non-exclusive, revocable
license to link to hid web page without framing is granted. This license may be terminated at any time
without cause.
©1997-2011. Unicorn Meadows, Ringoes, NJ, USA. All rights reserved.
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updated