Care Today Cure Tomorrow…
Special
Needs Trusts: Protect Your Child's Financial Future
Published by NOLO; 3 edition
(the experts on pro-bono [legal do it yourself])
available on
272 Pages with
a CD of Legal forms & more
$34.99 Preorder/order
for only $23.09 (34% off)
free shipping
available
ARC of Hunterdon
Saturday Program & Summer Day Camp
A Saturday Drop Off respite program for ages 7-18 with occasional
sleepovers
at Point Breeze in
There is no cost for either program but you need to be
The ARC of Hunterdon can assist you in becoming
Please click on the title link above for full details.
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T Winter
Family Rettreat NJ & Surrounding Region
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Downloadable Rett Syndrome Documents – created
by and provided at no charge by Unicorn Meadows.
What is Rett Syndrome (what’s wrong
with her?) [Download
pdf file]
What Kids (& Parents) ask about Rett Syndrome (why
is she so different?) [Download
pdf file] updated March 2009
Silent Angels (Life with A Special Needs Child) ©2006 Cindy
Primary Rett Links
RettHelp – Created by
RettHelp is a unique opportunity for
Rett Syndrome Magazine – Rett Syndrome Magazine is
for & about those with Rett Syndrome & those who love them, care for
them, befriend them, or otherwise serve them. The mission of this online
magazine is to focus on solutions, services, & supports that enhance the day-to-day
lives of those in the Rett Syndrome community. This includes those with Rett
Syndrome, parents, caregivers, siblings, friends, physicians, researchers,
nurses, educators, social workers, therapists, and others. Our goal is
to freely share information, stories, & inspiration with others.
Rett Syndrome Research Trust – Welcome to the Rett Syndrome Research Trust. A newly formed
501(c)(3) nonprofit organization intensively focused on the development of
treatments and cures for Rett Syndrome and related MECP2 disorders. The
strength of the Trust is based on the guidance of founders and advisors who are
largely responsible for the major advances in Rett research over the past
decade.
International
Rett Syndrome Foundation – Information,
resources & RETTNET. International
Rett Syndrome Foundation
is a 501(c)(3) non-profit organization.
The International Rett Syndrome
Association & the Rett
Syndrome Research Foundation merged in July 2007 to form
the International Rett Syndrome
Foundation.
National
Center for Biotechnology Information
National Institute of Health Rett Syndrome Booklet-2006 [Download pdf file 12
pages 8˝ x 11]
National
Institute of Health Rett Syndrome Fact Sheet Printer
Friendly Web Page
Request free mailed brochure
from NIH (one to ten copies)
USDA Agricultural Research Service
Helping Girls with Rett
Syndrome Improve Growth
Coping
With Rett Syndrome [Download pdf file]
Rett Articles [downloadable pdf files]
National Institute of Health Rett
Syndrome Booklet-2006 [Download pdf
file 12 pages 8˝ x 11]
Influence
of Mutation Type and X Chromosome Inactivation on Rett Syndrome Phenotypes
American Neurological Association [Download pdf file]
When The Brain
Fails – Huda Zoghbi unravels the genetics of Rett Syndrome and other disorders [Download pdf file]
How
Research Advances Will Affect People with Developmental Disabilities in the 21st
Century American Association on Mental Retardation
Other Articles [downloadable pdf files &
on-line articles]
Family
Support Center of New Jersey
NJ Division
of Developmental Disabilities News Center
Tax
benefits for parents with handicapped children from Ask.com
The Law & Disabilities
free various articles
Regional US Rett Links
New Jersey Rett Syndrome Association [Members
from New Jersey & the surrounding region]
Northwest Rett Syndrome Foundation [Members
from Oregon, Washington, Idaho, Northern California & Canada]
Rett Syndrome Association of Illinois [Members
from Illinois & some out of state members]
Southeastern Rett Syndrome Alliance
Rett Links Around the World [these links may not be in English
unless so noted]
Australia [In
English]
Austria [In German]
Belgium [In Dutch]
Brazil [In
Portuguese]
Canada Rett
Syndrome Society of Alberta [In English]
Ontario Rett Syndrome Association [In English]
Catalan [?]
Denmark [In Danish]
France [In French]
Rett
Syndrome Europe
[In English]
Germany [In German]
Holland [In
Dutch]
Israel [In Hebrew]
Italy [In Italian]
Japan [In Japanese]
Norway [In Norwegian]
Poland [In Polish]
Spain [In Spanish]
Spain [In Spanish] different web site
Sweden [In Swedish]
Turkey
[In Turkish]
Sweden [for English
access link click here] [Dual
Language Web Site in Swedish & English]
United Kingdom [In English]
Select Rett Links
Living Well
With Rett Syndrome
Rett
Syndrome Magazine Rett Syndrome on-line Magazine.
Rett e-mail Lists
IRSF RettNet
– IRSF RettNet is a moderated e-mail forum for all interested
persons, parents, teachers, relatives, therapists, doctors and friends who have
an interest in Rett Syndrome.
Subscribers to IRSF RettNet are primarily parents and guardians, but
also include a number of relatives, therapists,
teachers, physicians, researchers, and others interested in the cause.
List for Adults
who have a Rett Syndrome Angel in their life [You
must create a free Yahoo profile]
Rett
Syndrome Parents [You must create a free Yahoo profile]
Books about Rett Syndrome
The
Official Parent's Sourcebook on Rett Syndrome: A Revised and Updated Directory
for the Internet Age by Icon Health Publications
Paperback
(November 2002) Icon Group International - 184 pages – ISBN: 0597831203.
List
Price:$28.95 {Please confirm current price and availability with the order link.} To order
Pathways
to Learning in Rett Syndrome by Jackie Lewis & Debbie
Wilson
Paperback (May 1998) David Fulton Pub – 144 pages – ISBN: 185346533X.
List
Price:$26.95 {Please confirm current price and availability with the order link.} To order
Rett
Disorder and the Developing Brain by Alison Kerr (Editor),
Ingegerd Witt Engerstrom (Editor)
Hardcover (April 2001) Oxford Press – 379 pages – ISBN: 0192630830.
List
Price:$125.00 {Please
confirm current price and availability with the order link.} To order
Relevant books for Rett Syndrome
The
Official Parent's Sourcebook on Rett Syndrome: A Revised and Updated Directory for
the Internet Age by Icon Health Publications
Paperback
(November 2002) Icon Group International - 184 pages – ISBN: 0597831203.
List
Price:$28.95 {Please confirm current price and availability with the order link.} To order
Select Commercial Sources
(these links
have been provided by Rett Families, Relative & Friends – No endorsement is
made by this web site)
AssistedLivingStore.com
– Wholesale Linen & Textile products.
Gloves In A
Bottle – Protects the skin and retains its natural moisture.
Hinkle,
Fingles & Prior – NJ/PA Attorneys with many years of
experience providing expert counsel and legal services to families of people
with disabilities.
Most of their attorneys have
a sibling or family member with disabilities, so that have been there.
How-to-Register-a-Service-Dog-or-How-to-Scam-the-Disabled – Actually the article explains how to avoid
being scammed out of hundreds of dollars.
Spot, a service
dog, is the “owner” of http://www.ServiceDogTags.com
and is
a prolific writer, with his owner’s assistance, on matters concerning service
dogs and the disabled. Spot lets his owner help him put the web site together
and write articles as it's hard as heck to type with paws. Besides it's good to
throw his owner a bone every once in a while so he feels useful. Formerly
DoggyDMV, they now make low cost personalized service dog tags.
Southpaw
Enterprises® – Founded in 1976, they are dedicated to developing and
manufacturing sensory integration dysfunction & neurodevelopmental products
that help therapeutic professionals, people with special needs, their families,
& other professionals, solve problems or meet new challenges.
Wheelchair
Seat Covers™ – Decorative
wheelchair seat covers made by a mom
who has a teenage daughter with Rett Syndrome. Check it out.
You can even pay with PayPal.
Weighted Bean Blanket – Learn about the calming and comforting benefits of a hug from this special blanket.
Non Rett
Syndrome links that are Important to Laura’s Dad
Clink on the logo above to find legal
services related to Patents, Copyright, Trademarks, Internet & Computer Law
matched with a unique sense to your business needs. KRIVOSHIK LLC offers
over a decade of extensive experience in Intellectual Property Law including
all aspects of Patents, Copyrights, Digital Intellectual Property, Trade
Secrets, Internet Law and Trademark Law, Intellectual Property Law is our only
focus with technical expertise in the all aspects of electronic,
electrical, communication, computer systems, software, Internet, biomedical
instrumentation, optical and the mechanical arts as well as all aspects of
Digital Intellectual Property Law, Copyright Law and Trademark Law.
®
Click on our logo above to explore Ignatz® to discover a unique synergism of old world
professionalism with state of the art technology where you will unearth many
interesting facts, reference sources & links.
™
Visit our
eBay store by clicking on the logo above. eBay is The World's Online
Marketplace®, enabling trade on a local, national and international basis.
For the love
of our Rett Angel
Laura Amy
at Baba’s house with Skip her Service
(seizure & companion) Dog
on Russian Christmas (January 7th) August
2008
Please feel free to suggest a link or a pdf document etc. to
add. Please contact us at unicorn@ignatz.net.
Please understand that
this website is a negative profit
venture, thank you.
Downloadable PDF documents require the
free Adobe Reader.
This web
site is sponsored by 
® and 
™.
Please explore Ignatz® to discover a unique synergism of old world professionalism with state of the art
technology where you will unearth many interesting and helpful facts,
reference sources & links.
Please visit KRIVOSHIK LLC
for legal services related to Patents, Copyright, Trademarks,
Internet & Computer Law focused on your business needs.
This web site
was designed, created & is maintained by David P. Krivoshik.
A limited, non-exclusive, revocable
license to link to hid web page without framing is granted. This license may be terminated at any time
without cause.
©1997-2009.
Unicorn Meadows,
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